Note of Appreciation
Special thanks to the RECQ2016 Conference Organizing Committee for its benevolent distribution of residual funds from the Seattle conference to support the activities of the Bloom Syndrome Association and Rothmund-Thompson Syndrome Foundation. Additional thanks to...
Campaign Update
The tally is nearly complete for the 2016 Bianco Family’s Fundraiser. This year’s online fundraising campaign in memory of Vanessa Bianco and May 22 walkathon in Brooklyn, NY, for Bloom’s syndrome awareness raised more than $20,000 (online and through the mail) for...
2016 Bianco Family’s Fundraiser
Dear All, Gerard Bianco Jr., a member and active supporter of the Bloom’s Syndrome Association, recently launched an online fundraiser in loving memory of his sister, Vanessa. Vanessa was born in 1979, diagnosed with Bloom's syndrome before her first birthday, and...
RECQ2016 Coming Soon!
RECQ2016 – Partnering for Progress, an international meeting connecting medical and scientific researchers to patients and families affected by Bloom's syndrome and related disorders, is scheduled for May 28 – 30, 2016, in Seattle, Washington. The program will include...
Patient and Family Meeting!
An international meeting about Bloom's syndrome and related disorders, connecting medical and scientific researchers to patients and their families, is scheduled for Spring 2016. For more information, please see RECQ2016 – Partnering for Progress.