New Research Funding for Bloom Syndrome!
On November 9, 2021, the Bloom Syndrome Association participated in a think tank hosted by the University of Pennsylvania's Orphan Disease Center (ODC). The impetus for this event was an anonymous donation to the ODC in direct support of Bloom syndrome research. The...
Next Community Gathering Online – Register Now!
Our next community gathering is scheduled for Wednesday, September 22, 2021, at 8:00 PM GMT [convert to local time], and will run 60 minutes. BSA community gatherings are informal, online events geared toward social networking, group discussions, and the sharing of...
Next Community Gathering Online – Register Now!
Our next community gathering is scheduled for Tuesday, June 22, 2021, at 8:00 PM GMT [convert to local time], and will run 60 - 90 minutes. BSA community gatherings are informal, online events geared toward social networking, group discussions, and the sharing of...
Save the Date and Register Now!
Please join us on Thursday, May 13, 2021, at 8:00 PM GMT [convert to local time] for the first of four sessions in our new for 2021 webinar series. Session I is titled The Bloom Syndrome Registry: Supporting the Bloom Syndrome Community. This session will be presented...
Next Community Gathering Online – Register Now!
Our next community gathering is scheduled for Tuesday, March 30, 2021, at 8:00 PM GMT [convert to local time], and will run approximately 90 minutes. BSA community gatherings are informal, online events geared toward social networking, group discussions, and the...