Resources for Patients & Caregivers
Checklist
![BSA-resources-for-patients-caregivers](https://bloomsyndrome.imediaconsult.com/wp-content/uploads/2023/11/BSA-resources-for-patients-caregivers.png)
![mailing-list](https://bloomsyndrome.imediaconsult.com/wp-content/uploads/2023/11/mailing-list.png)
Sign up for our mailing list
By signing up, you’ll hear about the latest information and upcoming events!
![facebook-group](https://bloomsyndrome.imediaconsult.com/wp-content/uploads/2023/11/facebook-group.png)
Join the Bloom Syndrome Community Facebook group
The BSA maintains a closed group on Facebook. Ask questions to the group, see profiles of others in our community, and make connections with others from around the world!
![patient-familyresources](https://bloomsyndrome.imediaconsult.com/wp-content/uploads/2023/10/patient-familyresources.png)
Read the Patient & Family Handbook
Written by families, for families! Let us know if there’s more information you want in here, or if you’d like it in another language.
![medical-research](https://bloomsyndrome.imediaconsult.com/wp-content/uploads/2023/10/medical-research.png)
Share the ‘Health Supervision Recommendations’ with your care team
It’s critically important to watch carefully for cancer or other complications due to Bloom syndrome.
![bloom-syndrome-registry](https://bloomsyndrome.imediaconsult.com/wp-content/uploads/2023/11/bloom-syndrome-registry.png)
Enroll in the Bloom Syndrome Registry
Enrolling will help researchers learn about and better understand Bloom syndrome and health outcomes.
![bloom-syndrome-overview](https://bloomsyndrome.imediaconsult.com/wp-content/uploads/2023/10/bloom-syndrome-overview.png)
Sign up for the Community Data Project
Participate to help us understand Bloom syndrome and how it compares to other rare diseases.
![other-research-studies](https://bloomsyndrome.imediaconsult.com/wp-content/uploads/2023/11/other-research-studies.png)
![donate](https://bloomsyndrome.imediaconsult.com/wp-content/uploads/2023/10/donate.png)
Donate or Fundraise for the BSA
We are supported entirely by donations and grants. The BSA maintains a fundraising toolkit if you’re looking for ideas on how to support!
![get-involved](https://bloomsyndrome.imediaconsult.com/wp-content/uploads/2023/10/get-involved.png)
Volunteer with the BSA
We are a 100% volunteer-run organization! If you, your friends, or family want to get involved, we’d love to have you!